st clare - how important is having support?
25 March 2013
A years ago I remember sitting with a close girl friend of mine & saying how I really needed an ‘extra’ set of hands to help with Saba (as you cannot EVER leave her side for safety) so that I could still tend to Cooper’s needs in a normal way, make the beds, do the housework, cook, do the food shopping, exercise, have time for & be there for Mick (my beautiful husband) & then … find some time for myself or to catch up with friends.
It had to be someone that had a positive personality & that we could comfortably share our space with. I am sure there were many tears shed during this conversation as the new ‘work–load’ that came with Saba’s acquired disability was quite daunting & overwhelming.
My friend suggested her babysitter Clare O’Donohoe who was studying to become a nurse at that stage. I called Clare & we decided to meet & see how we felt about each other & for her to meet Saba & the family . The minute we met we hit it off & we knew that Clare would be perfect to have working with us. So on the 10th March 2011 Clare started as Saba’s REGISTERED NURSE. She was a breath of fresh air with her gorgeous, caring, funny (she’s a hoot), loyal and hardworking personality. Clare entered our lives at the right time & was very much a part of ‘lifting’ us as a family.
Clare is now a registered nurse & has asked to start with us full-time starting in May – hallelujah – we said YES!! So Clare has become Saba’s private nurse (that we fund privately through the foundation). We have nicknamed her St.Clare. Thank you St.Clare for all you do for Saba, Cooper, myself & our family. X X
saba's schooling - holy rosary, doubleview
25 March 2013
This year Saba is in Year 1 at Holy Rosary Catholic Primary School in Doubleview that has a unique blend of mainstream, healthy children and children with special needs.
Saba is part of the ‘Siena Centre’ at Holy Rosary which educates, respects & teaches children of all levels of disability. At the moment Saba alternates between mainstream class & the Siena Centre on a Tuesday, Wednesday & Thursday. Saba’s classroom teacher is Miss Michelle Moore and her special needs teacher is Mrs Robyn O’Connor. As Saba’s needs are so complex, Saba has many teacher assistants from the beautiful Siena Centre team, working one-on-one with her as an educational assistant within the classroom to ensure that Saba is given the supported opportunity to interact with others & to always work to the best of her abilities. Clare is also with our princess Saba & is also a qualified nurse which gives us peace of mind that if an emergency situation should arise, that Saba will have the support she needs.
An IEP (individualised education plan) has been designed for Saba to ensure that we are all on the same page about what goals we are trying to achieve for Saba. However small these may be, they are HUGE for Saba.
Holy Rosary is an exceptional school, one where all students are loved, respected, supported. The mainstream children are so accepting of Saba’s complex disability and are always singing to, dancing around, reading to Saba or helping Saba play. Saba has made some beautiful friends.
We feel blessed that Saba & our family are part of the Holy Rosary Community.
Thank you. X
rottnest family holiday
22 March 2013
Early in March we went over to Rottnest Island for our annual family holiday. As you can imagine this is quite a logistical challenge as there is so much to take with us, seating equipment, therapy equipment, feeding equipment, oxygen, suction machine, medicines & then all the other ‘normal’ things that a family takes to Rotto. We also took Clare with us (Saba’s private nurse) so that we could have some R & R …
As you can see we shared some beautiful family moments in Rotto & Saba got to have a swim in the ocean & was very much enjoyed by her brother Cooper, the mad fisherman. However, unfortunately, Saba needed to come home & go to PMH ‘twice’ during our 2 week holiday so it wasn’t really the relaxing holiday we had planned. We want to say THANK YOU to the beautiful staff at the Rottnest Nursing Post for helping us look after & care for Saba. You were always keen for us to come back onto the island & keep trying to make the holiday work. Also, THANKS to Lauren & the team at the Rottnest Visitors Centre for helping us get over to Longreach Bay with all of our equipment & entourage. We will try again next year!!
rottnest channel swim 2013 - team 'swim for saba'
26 February 2013
On the weekend the girls Abbey Valentine, Emily Valentine, Sarrah Mitchell & Jessie Mitchell completed the Rottnest Channel Swim 2013 for the Saba Rose Button Foundation. They raised a mammoth $15 000 for Saba’s Foundation which is truly amazing.
The girls completed the swim in just over 6 hours and then we all headed over to Longreach Bay for a BBQ lunch to celebrate with our families. Was such a great day!!
Special thanks goes out to the girls, their support crew and families. We realise that a lot of work, training, support & effort goes in to completing the Rotto swim. Also a huge thank you to all of you who donated. We are already looking forward to next year!!
Girls, you are truly inspiring … THANK YOU. X
23 February 2013
In 2011 we were interviewed by Dixie Marshall (Channel 9) on what had happened to Saba.